The ArgusUrgent appeal to find donor to save Sussex teenager's life (From The Argus)

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Urgent appeal to find donor to save Sussex teenager's life

The Argus: Urgent appeal to find donor to save Sussex teenager's life Urgent appeal to find donor to save Sussex teenager's life

An urgent appeal has been launched to find a donor who could save a teenager’s life.

Sophie Bosley suffers froma rare formof leukaemia and her only chance of a cure is a bone marrow transplant.

The teenager’s family have organised a recruitment event for donors later this month and are urging people to come forward to sign up to the Antony Nolan register.

Mum Kirstin Bosley, 43, said: “Her doctors talked about the need for a bone marrowtransplant from the beginning – it’s the only hope of a cure for her.

“Sophie’s sister Emily is not a match, so we need to find a matching donor through Anthony Nolan.”

They are desperately hoping a match can be found so the teenager can fulfil her dreams of going to Oxford University and becoming a journalist.

Sophie was diagnosed with chronic myeloid leukaemia in October 2011, aged 14.

The condition is extremely rare among children and young adults, with fewer than 15 new cases diagnosed in the UK each year.

Mrs Bosley an early years teacher, said: “When Sophie was diagnosed, we felt absolute devastation.

“I just wished it was me instead and that I could take it away from her.”

Despite living in uncertainty while she awaits a transplant, Sophie has continued to embrace life.

Mrs Bosley from Midhurst, said: “Sophie has always been a highly-motivated and positive girl.

“Despite her diagnosis, she passed all 12 of her GCSEs, while carrying on her hobbies such as Girl Guiding andmusic.

I’m so proud of her.

“She’s now aspiring to go to Oxford and one day wants to be a journalist. I think it’s this positive and determined frame of mind which has helped her a lot as she has coped with her illness.

“In the meantime, Sophie is taking each day as it comes, studying for her AS Levels and carrying on with her music as well.

“Lots of local people ask me what they can do to help, and I feel the most important thing is to raise awareness.

“People who are eligible can join the donor register and even if you can’t join the register, there’s so much you can do by spreading the word and raising funds.”

Ann O’Leary, head of register development at Anthony Nolan, said: “Many people don’t realise howeasy it is to join the bone marrow donor register and how simple the donation process is.”

The donor recruitment event is being held on January 22 at Chichester College between 11.30am and 2.30pm.

People aged 16 to 30 and in good health are eligible to join the register.

All they need to do is provide a saliva sample and fill in a form.

For more details, visit www.anthonynolan.

org.

Comments (8)

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1:35pm Wed 15 Jan 14

Brighton1000 says...

A very worthwhile article, I am unfortunately too old, however i have tweeted to try spread the word. I wish you all the luck and god willing a speedy recovery and succesful life.
A very worthwhile article, I am unfortunately too old, however i have tweeted to try spread the word. I wish you all the luck and god willing a speedy recovery and succesful life. Brighton1000
  • Score: 9

7:03am Thu 23 Jan 14

mediasuicide says...

Have just registered to donate, hope others feel similarly inspired.
Have just registered to donate, hope others feel similarly inspired. mediasuicide
  • Score: 6

10:35am Thu 23 Jan 14

JerryOnly says...

**** IT I missed this and am too old now.

All the very very best to you for the future young lady.
**** IT I missed this and am too old now. All the very very best to you for the future young lady. JerryOnly
  • Score: 1

8:28pm Thu 23 Jan 14

DCCCCCC says...

I too am too old unfortunately however, like others I will spread the word. I feel for this young lady and her family who must be going through a very difficult time. All the very best to you.
I too am too old unfortunately however, like others I will spread the word. I feel for this young lady and her family who must be going through a very difficult time. All the very best to you. DCCCCCC
  • Score: 3

9:38pm Thu 23 Jan 14

tinkerbellfairy says...

I just copied this from the NHS website the uper age limit id higher on the British Bone Marrow Register .......

Who can donate bone marrow :

If you would like to become a potential bone marrow donor, you must be:
18 to 49 years of age to join the British Bone Marrow Registry
16 to 30 years of age to join the Anthony Nolan Trust register
in good general health
over 8 stone (51kg) in weight
I just copied this from the NHS website the uper age limit id higher on the British Bone Marrow Register ....... Who can donate bone marrow : If you would like to become a potential bone marrow donor, you must be: 18 to 49 years of age to join the British Bone Marrow Registry 16 to 30 years of age to join the Anthony Nolan Trust register in good general health over 8 stone (51kg) in weight tinkerbellfairy
  • Score: 3

10:29am Fri 24 Jan 14

RaveyDavey says...

Evening Argus - any chance of investigating whether another body, ie like the British Bone Marrow Registry, could assist, or does it HAVE to be via Anthony Nolan? In line with most of the posts above I am over 30, but would be happy to offer to help if I am a suitable match.
Good luck to her in finding a donor and recovering soon!
Evening Argus - any chance of investigating whether another body, ie like the British Bone Marrow Registry, could assist, or does it HAVE to be via Anthony Nolan? In line with most of the posts above I am over 30, but would be happy to offer to help if I am a suitable match. Good luck to her in finding a donor and recovering soon! RaveyDavey
  • Score: 2

12:10pm Mon 27 Jan 14

Seagulls14 says...

Here you go RaveyDavey, get registered with British bone marrow registry, they collaborate with Anthony Nolan trust. I'm registered as I give blood. Donating does take a little more effort than asking the Argus to find the information for you. Hope there is a speedy match & speedy recovery to Sophie Good luck, see below:

How can I join the register?

You must be aged between 18 and 49 years old (registered before your 50th birthday) and be a blood donor. You can join when you next give blood, or at the same time as your first donation. We will check that there is no medical reason preventing you from being both a blood donor and a stem cell donor. At the time of your blood donation we will take an extra blood sample, so that we can identify your tissue type for the registry from your DNA - the genetic material our bodies are made up from. Please inform the staff at the blood donation session that you wish to join the BBMR before your blood donation is taken.

What happens next?

Patients and potential donors are matched by comparing the white cells in the blood to reveal tissue types. We work in collaboration with Anthony Nolan, a charity dedicated to saving the lives of patients needing a stem cell transplant. If you register with the BBMR you may in future be asked for permission to be contacted by Anthony Nolan if you are ever identified as a possible donor for a patient needing a stem cell transplant. If you agree Anthony Nolan will contact you to talk you through the next steps, and ask you for a further blood sample for more extensive tissue typing. If you have any questions about this you can ask a member of registry staff. This is a serious commitment and you should consider the full implications for both you and the patient when you first complete the consent form and provide a blood sample for testing. If, however, you do not wish to proceed, you may withdraw at any stage
Here you go RaveyDavey, get registered with British bone marrow registry, they collaborate with Anthony Nolan trust. I'm registered as I give blood. Donating does take a little more effort than asking the Argus to find the information for you. Hope there is a speedy match & speedy recovery to Sophie Good luck, see below: How can I join the register? You must be aged between 18 and 49 years old (registered before your 50th birthday) and be a blood donor. You can join when you next give blood, or at the same time as your first donation. We will check that there is no medical reason preventing you from being both a blood donor and a stem cell donor. At the time of your blood donation we will take an extra blood sample, so that we can identify your tissue type for the registry from your DNA - the genetic material our bodies are made up from. Please inform the staff at the blood donation session that you wish to join the BBMR before your blood donation is taken. What happens next? Patients and potential donors are matched by comparing the white cells in the blood to reveal tissue types. We work in collaboration with Anthony Nolan, a charity dedicated to saving the lives of patients needing a stem cell transplant. If you register with the BBMR you may in future be asked for permission to be contacted by Anthony Nolan if you are ever identified as a possible donor for a patient needing a stem cell transplant. If you agree Anthony Nolan will contact you to talk you through the next steps, and ask you for a further blood sample for more extensive tissue typing. If you have any questions about this you can ask a member of registry staff. This is a serious commitment and you should consider the full implications for both you and the patient when you first complete the consent form and provide a blood sample for testing. If, however, you do not wish to proceed, you may withdraw at any stage Seagulls14
  • Score: 4

12:06pm Fri 31 Jan 14

RaveyDavey says...

Seagulls14 wrote:
Here you go RaveyDavey, get registered with British bone marrow registry, they collaborate with Anthony Nolan trust. I'm registered as I give blood. Donating does take a little more effort than asking the Argus to find the information for you. Hope there is a speedy match & speedy recovery to Sophie Good luck, see below:

How can I join the register?

You must be aged between 18 and 49 years old (registered before your 50th birthday) and be a blood donor. You can join when you next give blood, or at the same time as your first donation. We will check that there is no medical reason preventing you from being both a blood donor and a stem cell donor. At the time of your blood donation we will take an extra blood sample, so that we can identify your tissue type for the registry from your DNA - the genetic material our bodies are made up from. Please inform the staff at the blood donation session that you wish to join the BBMR before your blood donation is taken.

What happens next?

Patients and potential donors are matched by comparing the white cells in the blood to reveal tissue types. We work in collaboration with Anthony Nolan, a charity dedicated to saving the lives of patients needing a stem cell transplant. If you register with the BBMR you may in future be asked for permission to be contacted by Anthony Nolan if you are ever identified as a possible donor for a patient needing a stem cell transplant. If you agree Anthony Nolan will contact you to talk you through the next steps, and ask you for a further blood sample for more extensive tissue typing. If you have any questions about this you can ask a member of registry staff. This is a serious commitment and you should consider the full implications for both you and the patient when you first complete the consent form and provide a blood sample for testing. If, however, you do not wish to proceed, you may withdraw at any stage
Nice one - thanks a lot. Onto it now!
[quote][p][bold]Seagulls14[/bold] wrote: Here you go RaveyDavey, get registered with British bone marrow registry, they collaborate with Anthony Nolan trust. I'm registered as I give blood. Donating does take a little more effort than asking the Argus to find the information for you. Hope there is a speedy match & speedy recovery to Sophie Good luck, see below: How can I join the register? You must be aged between 18 and 49 years old (registered before your 50th birthday) and be a blood donor. You can join when you next give blood, or at the same time as your first donation. We will check that there is no medical reason preventing you from being both a blood donor and a stem cell donor. At the time of your blood donation we will take an extra blood sample, so that we can identify your tissue type for the registry from your DNA - the genetic material our bodies are made up from. Please inform the staff at the blood donation session that you wish to join the BBMR before your blood donation is taken. What happens next? Patients and potential donors are matched by comparing the white cells in the blood to reveal tissue types. We work in collaboration with Anthony Nolan, a charity dedicated to saving the lives of patients needing a stem cell transplant. If you register with the BBMR you may in future be asked for permission to be contacted by Anthony Nolan if you are ever identified as a possible donor for a patient needing a stem cell transplant. If you agree Anthony Nolan will contact you to talk you through the next steps, and ask you for a further blood sample for more extensive tissue typing. If you have any questions about this you can ask a member of registry staff. This is a serious commitment and you should consider the full implications for both you and the patient when you first complete the consent form and provide a blood sample for testing. If, however, you do not wish to proceed, you may withdraw at any stage[/p][/quote]Nice one - thanks a lot. Onto it now! RaveyDavey
  • Score: 0

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