"I WILL make something good of having this cancer."

Those were the words of Brighton teenager Charlotte Eades after being diagnosed with the devastating brain cancer that claimed her life at the age of just 19.

Today the inspirational video blogger's hope comes true as her family launch a charity in her memory.

During her battle with glioblastoma, a rare and rapidly-spreading form of brain cancer dubbed "the Terminator".

Charlotte inspired thousands with her humorous, emotional and frank YouTube vlogs on the ups and downs of life with the disease and her love of fashion.

She died in February, a week after her 19th birthday.

Charlotte's mother Alex, 55, and brother Miles, of Withdean, will today launch Charlotte's Battle Against Glioblastoma (BAG) at the Royal Pavilion.

Mrs Eades said: "Losing Charlotte was and still is completely devastating, but the aim of Charlotte's BAG is to try and make sure that other glioblastoma patients and their families do not suffer in the same way.

"Medics call glioblastoma 'the Terminator' because currently there is no cure and the only treatment is to reduce the symptoms and relieve pain for as long as possible. We aim to change this."

The launch of Charlotte's BAG follows Cancer Research UK's thought-provoking annual Stand Up To Cancer campaign, of which the Eades family were the official faces.

After her death her family praised her grace and courage promised to continue her legacy.

Speaking to The Argus in the days after his younger sister's death Miles said: "When she was younger she said to me she feared she would never make a footprint on the world.

"Now I think she really has made a large one."

As a trustee for the new charity Miles is adamant that Charlotte will never become ‘just another statistic’, and is determined to ensure that glioblastoma becomes ‘just another cancer’ rather than the death sentence it currently is.

Her dream to help others is today realised as the charity in her name will specifically focus on raising funds for research into, and awareness of, glioblastoma multiforme.

The very rare and currently nearly always terminal form of brain cancer affects young people between the age of 12 and 18.

Almost a million people have viewed Charlotte's YouTube channel and her death made national and global news with reports from as far afield as Russia and Australia.

After the disease stripped her of her speech, and her ability to walk unaided, her death was announced by her mother on a vlog titled: "Thank you all - 1997-2016".

In the announcement, Mrs Eades said she hoped the vlogs would be a "legacy" to her daughter.

Her family bravely kept the vlogs going, posting on various subjects including symptoms of cancer and coping with grief and more light-hearted subjects such as her handbag collection.

In their most recent post this week Mrs Eades said: "It is eight months since we lost Charlotte.

"At this point there are three other young people who have also passed this year. I always think about that. The people I always think about. I know there parents are suffering very much as well.

"You have got to keep on however hard it is. I know my self its really terribly easy to give up but you just cant you just have to force yourself to keep going however hard it is."

She also told how she had found an old memory card containing a series of never before seen videos of Charlotte which they hope to post in the coming weeks.

The new charity, whose name was partly inspired by Charlotte's love of handbags, is believed to be one of the only ones in the UK to specifically raise funds for the research into and awareness of glioblastoma.

Charlotte’s mother said she was using her "infinite grief" to try and make sure that no other person suffers in the same way as her family, and to keep Charlotte’s legacy alive.

She said: “Losing Charlotte has devastated us all but Charlotte was an ambassador about cancer in young people and she made an incredible difference to many people’s lives through her youtube channel and through work she did with Cancer Research UK and other charities.

“Now we want to try and ensure that other families do not suffer as Charlotte and we did, so we are putting all our efforts into trying to find a cure for glioblastoma by supporting her consultant and fundraising for new trials and research.”

The charity is also backed by consultant neuro-oncologist Dr Stergios Zacharoulis who treated Ms Eades during her illness. He will be leading a new glioblastoma research programme.

He said: "The problem with glioblastoma is that it is extremely aggressive, and current treatments do not touch it. Brain cancer research is incredibly underfunded.

"Only 1% of annual cancer funding is currently devoted to it, and there has been no real progress since the introduction of the drug temozolomide in 1990."

Proceeds from Charlotte's BAG will go into research funding via Dr Zacharoulis's team, who will draw on existing data and protocols on glioblastoma treatment, and research new options and ways of getting treatment to patients faster.

HELPING TO FUND RESEARCH

What is Glioblastoma Multiforme?

Glioblastoma multiforme is a form of cancer in which the brain cells start to divide rapidly and uncontrollably, creating a malignant tumour.

Why is Glioblastoma so hard to treat?

It is very aggressive; and its effect is to cause chaos in the brain. Drug penetration varies depending on the density of the tissue and the interaction between the cancer cells with blood vessels and surrounding tissue, and is also impeded by the blood-brain barrier.

Why does it affect young people?

No one knows. It may be that the brain is still developing. If a child under the age of three is diagnosed with a brain tumour survival rates are up to 60 per cent, while over the age of three the prognosis is much bleaker.

What current treatment is there for Glioblastoma?

Current treatment includes surgery, although it is hardly ever possible to remove glioblastoma cells completely, and radiotherapy. Chemotherapy is largely ineffectual. Current treatment is designed to minimise the symptoms for as long as possible and to provide effective pain relief.

Why is it taking so long to find a cure for Glioblastoma?

Brain cancers only receive one per cent of UK research funding annually and because glioblastoma is so rare there is no statistically significant data to establish the cost-effectiveness for any forms of treatment.

How will Charlotte’s BAG help?

Every penny raised will go into research at King’s College Hospital, London. Their work will include genetic mapping of glioblastoma, clinical trials establishing faster testing for new and existing drugs, and developing new ways of delivering medication directly to the site of the tumour.