A two-year-old boy said goodbye to his family seconds before suffering a fatal seizure on Christmas Day.

Ollie Johnson smiled happily at his family, including 18-month-old twin brothers Harley and Hayden, before bidding them farewell.

But “bye” was to be the little boy’s last word as moments later at 6pm he fell into a seizure and was induced into a coma from which he never regained consciousness.


At 7.25pm on December 27 he died in his mother Sarah Johnson’s arms.

Now brave Mrs Johnson, married to Ollie’s father Steve, 29, has paid tribute to her “amazing” son who was “full of fun and laughter”.

She said: “Ollie lit up every single room that he entered and made so many people smile.“He was loved by so many and had a huge impact on everyone that ever had the pleasure to meet him.

“Ollie was so much stronger than we’ll ever be.“He was an amazing big brother.”

Mrs Johnson, 33, of Mile Oak, Portslade, added: “We are all hurting more than words could ever say.

“Our world has been ripped apart.

“Ollie had a lovely Christmas Day with us. But sadly he started have a seizure just before 6pm and it just wouldn’t stop.

“There are no words to tell you how helpless we all felt.”

Ollie suffered from Dravet Syndrome, a severe form of epilepsy.

His mother told how his final hours were spent laughing and smiling with his family.

“His last hours were filled with love,” she said.

She added: “He had a lovely morning.

“We gave him some presents and he played with them.

“He then shouted ‘bye’ and waved to the family before having a seizure.”

He was put into an induced coma at the Royal Alexandra Children’s Hospital in Brighton before being transferred to hospital in London where he died.

Ollie will be laid to rest in the Downs Crematorium, Brighton, on Friday.

During the service some of Ollie’s favourite songs including Insy Winsy Spider and Twinkle, Twinkle, Little Star will be played.

His coffin will be decorated with stickers and mourners will wear brightly-coloured tee-shirts in his honour.

Before he died Ollie’s family – who have a Facebook group in his honour – raised £5,000 for Dravet Syndrome support.

They will continue to do this in his owner.

If you would like to donate via justgiving.com/OLLIE210411/