LITTLE Daniel Barnes is one in a million and needs the support of people across Sussex to help him towards a positive future.
The youngster has an extremely rare condition called black bone disease which will gradually affect his bones, muscles and joints and possibly his vital organs as he grows up.
Fortunately there is hope on the horizon with a new drug that can stem the onset of the disease but thousands of pounds needs to be raised to cover the cost of an important trial.
His parents are doing everything they can to help Daniel and others like him and it is hoped people around the county will pull together and do their bit by making a donation to a crowdfunding campaign as quickly as possible.
Time is running out as the deadline for donations is the end of the month but hitting that target will provide vital hope for the future for Daniel and others like him.
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