ALISON Lapper has revealed her heartache that her son will miss her wedding day - in an open later weeks after he was found dead in a hotel room.

The disabled artist from Shoreham shared the heartbreaking note to son Parys, in which she talked about marrying her partner.

Journalist Grant Tucker shared the emotional letter to 19-year-old Parys, whose mum claims he died after turning to drugs when he was bullied at school.

She wrote: "I'm so grateful that you had the chance to get to know Si and I know from Sals Mgee that not only did you approve but you love him too, that means the world to me.

"You will be with us on our wedding day, my diamond boy.

>> SEE ALSO: Son of disabled woman who posed pregnant for iconic plinth sculpture dies aged 19

"My heart feels shattered, my pain is unbearable knowing I won't see your beautiful handsome face again, I miss you so much already.

"I miss your smile, your laugh, your smell, even when it was bad."

Alison posed while eight months pregnant with Parys for an iconic marble plinth designed by Marc Quinn.

The mum, who is is 3ft 11in and was born with phocomelia - a condition producing defects similar to those caused by the drug Thalidomide.

The Argus:

She was left heartbroken after Parys was discovered dead in a Worthing hotel room.

The £150,000 sculpture of pregnant Alison was on display in Trafalgar Square from 2005 to 2007.

Days after laying her son to rest, she said he had struggled to cope with social media pressure - and might have died from an accidental overdose.

She told The Times: "I don’t want my son to be remembered as a junkie, as just another drugs death.

“The drugs were a consequence of what he had been through.

“Mums like me shouldn’t be burying 19-year-old kids, should we?

"He’s supposed to be burying me.”

Her partner, Si Clift, shared a tribute to Parys after the tragedy, saying: "Please take away from this some essence of love and kindness and act upon it.

The Argus:

"Please take away from this a realisation that you are not alone, that you can talk and not to hold things within.

"Whatever it is, there is help."

In the devastating message, he added: "Keep Parys in the forefront of your minds and hearts for a long while...he was a mischievous, generous, kind , loving, frustrating, cheeky, forgiving, beautiful boy."

Parys featured on the BBC Child Of Our Time documentary.

The artist mother of Parys Lapper, who died suddenly at the age of 19 last month, has shared an emotional letter to her late son.

Alison Lapper released the letter via social media after burying the teenager, who police say may have died from an accidental overdose.

Parys had been struggling with his mental health after years of bullying at school due to his mother’s disability.

The note praises Parys for his sensitive and gentle nature, and for his wonderful and vivid imagination. It recalls how Parys would physically lift his mother – who was born with no arms and shortened legs due to a congenital disorder – and place her “somewhere I didn’t want to be, which in the end would make me laugh.”

It also sees Alison lament the fact her son will not attend her upcoming wedding to partner Si Clift, but takes comfort from the fact Parys loved him.

She signs off, telling him: “I hope that your mind is peaceful now… it was a privilege to be your mother.”

Lapper last week told The Times that at the age of 13, Parys had asked her not to attend parent evenings because of the bullying.

Lapper, who said she believed her son had been on the road to recovery, stated that she did not want him to be remembered as a “junkie, as just another drugs death”, adding: “The drugs were a consequence of what he had been through.”

The Argus:

She told the newspaper: “Mums like me shouldn’t be burying 19-year-old kids, should we? He’s supposed to be burying me.”

Lapper is known around the world for her work, but in 2014 she said Parys is “my greatest piece of art work and creation”.

She uses photography, digital imaging and painting to question physical normality and beauty.

As an artist she poses questions around perceptions of physical ‘normality’ and beauty ideals through the mediums of photography, digital imaging, and painting.

A member of the Mouth and Foot Painting Artists of the World, she has used her body as subject matter for artworks.

The statue of Lapper, titled Alison Lapper Pregnant, was a 13-tonne, 11ft 6in high white marble sculpture by artist Marc Quinn, and was unveiled in Trafalgar Square in 2005.

London mayor at the time, Ken Livingstone, hailed Lapper as a “modern heroine”.