The ArgusTributes to two-year-old Ollie Johnson after fatal seizure at Portslade home on Christmas Day (From The Argus)

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Tributes to two-year-old Ollie Johnson after fatal seizure at Portslade home on Christmas Day

The Argus: Tributes to two-year-old Ollie Johnson after fatal seizure at Portslade home on Christmas Day Tributes to two-year-old Ollie Johnson after fatal seizure at Portslade home on Christmas Day

A two-year-old boy said goodbye to his family seconds before suffering a fatal seizure on Christmas Day.

Ollie Johnson smiled happily at his family, including 18-month-old twin brothers Harley and Hayden, before bidding them farewell.

But “bye” was to be the little boy’s last word as moments later at 6pm he fell into a seizure and was induced into a coma from which he never regained consciousness.


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At 7.25pm on December 27 he died in his mother Sarah Johnson’s arms.

Now brave Mrs Johnson, married to Ollie’s father Steve, 29, has paid tribute to her “amazing” son who was “full of fun and laughter”.

She said: “Ollie lit up every single room that he entered and made so many people smile.“He was loved by so many and had a huge impact on everyone that ever had the pleasure to meet him.

“Ollie was so much stronger than we’ll ever be.“He was an amazing big brother.”

Mrs Johnson, 33, of Mile Oak, Portslade, added: “We are all hurting more than words could ever say.

“Our world has been ripped apart.

“Ollie had a lovely Christmas Day with us. But sadly he started have a seizure just before 6pm and it just wouldn’t stop.

“There are no words to tell you how helpless we all felt.”

Ollie suffered from Dravet Syndrome, a severe form of epilepsy.

His mother told how his final hours were spent laughing and smiling with his family.

“His last hours were filled with love,” she said.

She added: “He had a lovely morning.

“We gave him some presents and he played with them.

“He then shouted ‘bye’ and waved to the family before having a seizure.”

He was put into an induced coma at the Royal Alexandra Children’s Hospital in Brighton before being transferred to hospital in London where he died.

Ollie will be laid to rest in the Downs Crematorium, Brighton, on Friday.

During the service some of Ollie’s favourite songs including Insy Winsy Spider and Twinkle, Twinkle, Little Star will be played.

His coffin will be decorated with stickers and mourners will wear brightly-coloured tee-shirts in his honour.

Before he died Ollie’s family – who have a Facebook group in his honour – raised £5,000 for Dravet Syndrome support.

They will continue to do this in his owner.

If you would like to donate via justgiving.com/OLLIE210411/

Comments (15)

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6:03am Sat 4 Jan 14

Dave At Home says...

A very sad story and at Christmas too, I am sure there will never be another Christmas that goes by when little Ollie will be remembered with such love and affection by his doting parents and family.

RIP little Ollie.

PS. What a shame there are so many mistakes in the story, did he die on the 25th or the 27th of December and the fund was set up in his honour, not his owner.
A very sad story and at Christmas too, I am sure there will never be another Christmas that goes by when little Ollie will be remembered with such love and affection by his doting parents and family. RIP little Ollie. PS. What a shame there are so many mistakes in the story, did he die on the 25th or the 27th of December and the fund was set up in his honour, not his owner. Dave At Home
  • Score: 33

8:36am Sat 4 Jan 14

hyram77 says...

What a terribly sad story about an extremely brave little boy. I haven't heard of Dravet syndrome before but will certainly make a donation in Ollies honour.
What a terribly sad story about an extremely brave little boy. I haven't heard of Dravet syndrome before but will certainly make a donation in Ollies honour. hyram77
  • Score: 21

8:47am Sat 4 Jan 14

jagiwatch says...

Sleep tight little man xxx
Sleep tight little man xxx jagiwatch
  • Score: 23

9:09am Sat 4 Jan 14

Eddddd27 says...

Love and thoughts to family. X
Love and thoughts to family. X Eddddd27
  • Score: 23

10:13am Sat 4 Jan 14

getThisCoalitionOut says...

Such a sad story. My sincere condolences to his family.
Such a sad story. My sincere condolences to his family. getThisCoalitionOut
  • Score: 23

10:47am Sat 4 Jan 14

Tea&cake says...

Best wishes to the little lads family. How awful :( shame that the reporter couldn't have enough respect to proof read it for mistakes first. Shoddy!
Best wishes to the little lads family. How awful :( shame that the reporter couldn't have enough respect to proof read it for mistakes first. Shoddy! Tea&cake
  • Score: 25

11:52am Sat 4 Jan 14

Ollie's mummy says...

Our beautiful & brave little Ollie,
mummy, daddy and the boys miss you and love you so much.
I promise you that I will make sure you are remembered for the amazingly brave little boy that you are.
Sweat dreams xxxxxx

https://www.facebook
.com/pages/Ollie-Joh
nson-is-living-with-
Dravet-Syndrome/2057
26116278493
Our beautiful & brave little Ollie, mummy, daddy and the boys miss you and love you so much. I promise you that I will make sure you are remembered for the amazingly brave little boy that you are. Sweat dreams xxxxxx https://www.facebook .com/pages/Ollie-Joh nson-is-living-with- Dravet-Syndrome/2057 26116278493 Ollie's mummy
  • Score: 40

12:08pm Sat 4 Jan 14

Ollie's mummy says...

https://www.facebook
.com/pages/Ollie-Joh
nson-is-living-with-
Dravet-Syndrome/2057
26116278493
https://www.facebook .com/pages/Ollie-Joh nson-is-living-with- Dravet-Syndrome/2057 26116278493 Ollie's mummy
  • Score: 13

2:07pm Sat 4 Jan 14

mimseycal says...

A happy chappie. My heartfelt thoughts are with you all.
A happy chappie. My heartfelt thoughts are with you all. mimseycal
  • Score: 5

2:21pm Sat 4 Jan 14

VegasSeagull says...

Over here there is a softening starting to take hold with regards to the recreational smoking of pot and it's medical uses, one of which is it's ability to reduce seizures. One particular report told of a child that suffered many seizures each day, after administering a pot extract to the child those seizures were cut to maybe one every now and then. I hope further research and testing can maybe one day help those children suffering from this particular syndrome.
Over here there is a softening starting to take hold with regards to the recreational smoking of pot and it's medical uses, one of which is it's ability to reduce seizures. One particular report told of a child that suffered many seizures each day, after administering a pot extract to the child those seizures were cut to maybe one every now and then. I hope further research and testing can maybe one day help those children suffering from this particular syndrome. VegasSeagull
  • Score: -12

3:47pm Sat 4 Jan 14

Farouche says...

What a wonderful little angel. He was hardly given a chance to start life. His braveness should be an inspiration for everyone. Bye bye little Ollie.
What a wonderful little angel. He was hardly given a chance to start life. His braveness should be an inspiration for everyone. Bye bye little Ollie. Farouche
  • Score: 10

6:24pm Sat 4 Jan 14

RainbowG says...

It is clear to see that although Ollie sadly had a short life, his life was filled with love and his was adored by all that knew him! Rest in peace brave little boy!
It is clear to see that although Ollie sadly had a short life, his life was filled with love and his was adored by all that knew him! Rest in peace brave little boy! RainbowG
  • Score: 16

7:23pm Sat 4 Jan 14

kat29 says...

R.I.P little Ollie. Heaven now has a beautiful special angel. God bless and sleep tight. Xx
R.I.P little Ollie. Heaven now has a beautiful special angel. God bless and sleep tight. Xx kat29
  • Score: 7

10:04pm Sat 4 Jan 14

Ollie's mummy says...

Thank you for the kind words and the donations that have been made.
Ollie has inspired so many people and we are very proud of him xxx
Thank you for the kind words and the donations that have been made. Ollie has inspired so many people and we are very proud of him xxx Ollie's mummy
  • Score: 9

11:34am Mon 6 Jan 14

Brighton1000 says...

VegasSeagull wrote:
Over here there is a softening starting to take hold with regards to the recreational smoking of pot and it's medical uses, one of which is it's ability to reduce seizures. One particular report told of a child that suffered many seizures each day, after administering a pot extract to the child those seizures were cut to maybe one every now and then. I hope further research and testing can maybe one day help those children suffering from this particular syndrome.
Can the Argus remove this post? DISRESPECTFUL BEYOND BELIEF.
[quote][p][bold]VegasSeagull[/bold] wrote: Over here there is a softening starting to take hold with regards to the recreational smoking of pot and it's medical uses, one of which is it's ability to reduce seizures. One particular report told of a child that suffered many seizures each day, after administering a pot extract to the child those seizures were cut to maybe one every now and then. I hope further research and testing can maybe one day help those children suffering from this particular syndrome.[/p][/quote]Can the Argus remove this post? DISRESPECTFUL BEYOND BELIEF. Brighton1000
  • Score: -2

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