A GIRL suffering from an agonising medical condition can now receive more than a year’s worth of treatment – thanks to the generosity of Argus readers.

Bethany Henry is almost constantly in pain from rare genetic condition tuberous sclerosis which causes tumours to grow in her body.

But after The Argus exclusively revealed her parents could have to sell their Portslade home to pay for medicine which could control the growth of her tumours on Monday, thousands of pounds flooded in to a fund to help her.

As the Argus went to press last night more than £16,000 had been raised to help pay for her treatment so her family will not have to lose their home in Shelldale Avenue.

Her father Luke, 34, said: “What The Argus has done has made a world of difference. It has raised the profile of her condition and our situation and with what we have raised already we can pay for 18 months worth of the drugs.

“We have had an absolutely crazy day. The phone hasn’t stopped ringing. All the national newspapers and TV have been on to us and people have been amazing.”

Bethany’s conditions means she suffers from 50 seizures a day, wakes every night screaming in pain and also suffers from autism.

At her last scan Bethany had a 10cm tumour on her kidney. She is at risk of losing both her kidneys and a serious bleed could be fatal.

There is a drug licensed to reduce her tumours and prevent more developing called everolimus, however despite Bethany’s doctor prescribing the drug the National Institute for Health and Care Excellence (NICE) will not fund it because her condition is considered too rare.

“The awareness it has raised has been brilliant,” said Luke.

“The doctors are saying they will now review Bethany’s prescriptions.

“I’m sure that now we have this much money we will be able to get her the prescription just like that.

“I’ve worked out that with what we’ve raised already in the past day we will be able to pay for 18 months’ worth of everolimus.”

Luke, who himself suffered a stroke only a couple of years ago, said they had also received support from Kate Spall – a charity campaigner who works helping patients battle NHS decisions on getting access drugs.

Ms Spall has handled cases involving everolimus – the drug which could help reduce Bethany’s tumours and prevent more developing.

He added: “She has dealt with other cases and managed to get patients everolimus.

“So we are really hopeful that her help will be invaluable too.”

To donate visit gofundme.com/swdu5k